How does it feel to be the parent of a child without a diagnosis?
The unchartered waters of life without a diagnosis….
The Rare Conundrum…..
A life less ordinary…. when your children are hell-bent on confounding the medical professionals…
Same but different….rare as Unicorn 💩???
This year 28th February 2018 is the worldwide celebration of Rare Disease Day. The very first ever Rare Disease Day was held in 2008 – a leap year so the perfect occasion for the initial 18 countries that signed up to celebrate. Every year since, countries across the world have united to raise awareness of… Continue reading Same but different….rare as Unicorn 💩???
“There are known knowns”…
” There are known knowns; there are things we know we know. We also know there are known unknowns; that is to say we know there are some things we do not know. But there are also unknown unknowns – the ones we don’t know we don’t know. ” Credit: Secretary of Defence Feb 2002… Continue reading “There are known knowns”…
Shoulda, woulda, coulda…..
I’m not often given to introspection or too much dwelling on the past; after all, it rarely helps in changing anything going forward and dredges up old emotions and difficulties that you can’t fix. Indeed, as my Father is so fond of saying “If your Aunty had bo**ocks, she would be your Uncle! (so couth,… Continue reading Shoulda, woulda, coulda…..