How does it feel to be the parent of a child without a diagnosis?
The unchartered waters of life without a diagnosis….
Who cares for the carers? There are many days where I feel like waving the white flag of surrender. I give up. Stick a fork in me, I’m done. Substitute your own personal favourite motto for when the 💩💩 just keeps on coming and you really don’t want to face it anymore. As a rule, I am… Continue reading Relentlessly Relentless….
adulating….an every day occurrence or a happenstance……
food-glorious-food…what’s not to love?!
This is a post I didn’t think I’d write for many years to come. One I shouldn’t even be thinking of composing. It’s not right. It’s not fair but here it is. I am also acutely aware that this ramble may be perceived as very self-indulgent. Far too many of my good friends have lost… Continue reading (Wo)Man’s best friend ❣️
A follow up to part 1…
Dealing with special education needs and the pitfalls thereof
The weekend just gone was a fab one! I was invited by SWAN UK to attend a blogging workshop to discuss techniques, skill sets, twitter and the issues of being a parent of an undiagnosed child in general, especially bearing in mind that April 29th 2016 will be this years Undiagnosed Children’s Awareness Day.… Continue reading Blinging it…….
Yesterday was D-Day – The Day I spoke at the Rare Diseases UK AGM in front of various learned bods and alliances of support groups etc. I have had so many wonderful messages, e-mails and texts asking how it went and am truly overwhelmed by the support; it means a lot. Since everyone was still… Continue reading D-Day….Red shoes Part 2…