The unchartered waters of life without a diagnosis….
A European Family Holiday….
Growing up is hard…. for parents ….
verb [ I ] US
to deal with problems or difficulties, esp. with a degree of success:
Inside homes, many residents coped with broken glass and collapsed walls and chimneys.
Victims cope with feelings of anxiety, pain, anger, and fear.
(Definition of “cope” from the Cambridge Academic Content Dictionary © Cambridge University Press)
Who cares for the carers? There are many days where I feel like waving the white flag of surrender. I give up. Stick a fork in me, I’m done. Substitute your own personal favourite motto for when the 💩💩 just keeps on coming and you really don’t want to face it anymore. As a rule, I am… Continue reading Relentlessly Relentless….
Do you see what I see?….Hmnnn what would that be?
This year 28th February 2018 is the worldwide celebration of Rare Disease Day. The very first ever Rare Disease Day was held in 2008 – a leap year so the perfect occasion for the initial 18 countries that signed up to celebrate. Every year since, countries across the world have united to raise awareness of… Continue reading Same but different….rare as Unicorn 💩???
adulating….an every day occurrence or a happenstance……
I’m not often given to introspection or too much dwelling on the past; after all, it rarely helps in changing anything going forward and dredges up old emotions and difficulties that you can’t fix. Indeed, as my Father is so fond of saying “If your Aunty had bo**ocks, she would be your Uncle! (so couth,… Continue reading Shoulda, woulda, coulda…..
There is a thing in my house. Strictly speaking, it is things plural. They seem to be arriving by the truck load on a weekly basis and they are lurking in my house bathroom, staring at me benevolently every time I go in. If I’m feeling cross and argumentative (me – mardy? pah!) I might… Continue reading The Thing……