Comfort food or food to comfort?

Today has been a bit 💩 I’m not going to lie…… We had to be Chez Hotel NHS Harrogate bright and early this morning for a date with radiology following G-Man’s “discussion” with a fire extinguisher on the last day of term. For the avoidance of doubt the fire extinguisher won & once again G… Continue reading Comfort food or food to comfort?

Once Upon a Time….

Let me tell you a story. Are you sitting comfortable? Then I’ll begin… Once upon a time there was a (relatively) normal family. Let’s call them the Jones’s, although I don’t think may people will be aiming to “keep up with the Jones’s”  once they have read this. In fact perhaps, it’s more a nightmare,… Continue reading Once Upon a Time….

D-Day….Red shoes Part 2…

Yesterday was D-Day – The Day I spoke at the Rare Diseases UK AGM in front of various learned bods and alliances of support groups etc. I have had so many wonderful messages, e-mails and texts asking how it went and am truly overwhelmed by the support; it means a lot. Since everyone was still… Continue reading D-Day….Red shoes Part 2…

Introducing the weird and not so wonderful…

I’m taking the plunge….no, not the ice bucket one that is doing the rounds (though it is being used very positively for various charities, raising awareness and much needed funds)…I’m afraid this is much less altruistic but I’m dipping my toes into the whirlpool of blogging…..Drum rolls, clapping and air horns aplenty please. Failing all… Continue reading Introducing the weird and not so wonderful…