The unchartered waters of life without a diagnosis….
Category: special needs
Happy Birthday to You – My Swan Song
It is fittingly ironic that yesterday, we received further communication from genetics regarding the 100,000 genome project (you can learn more about this: https://www.genomicsengland.co.uk/about-genomics-england/the-100000-genomes-project/) on the eve of Undiagnosed Children’s Day. Whilst the letter outlined what we already broadly knew (nothing has so far been found to explain the complexities related to Minx and potentially… Continue reading Happy Birthday to You – My Swan Song
A line in the sand….
Have you ever felt like running away? Just dropping everything, grabbing your car keys/travel pass/comfy walking shoes & heading off into the sunset?
The Self-isolation Society…..*
#turnlockdownpink
#UCD2020
Undiagnosed Children’s Day 2020 with SWAN UK
6 Go Crazy On A Socially Distanced Adventure…*
* a very dreadful homage to all things Enid Blyton to hopefully offer some light-relief in these challenging times….
The Rare Conundrum…..
A life less ordinary…. when your children are hell-bent on confounding the medical professionals…
Planes (no trains) & automobiles…..*
A European Family Holiday….
In the blink of an eye(roll)…
Growing up is hard…. for parents ….
3am Eternal….
The demons that prey at 3am…..
The Trigger…..(Pull it)
cope
verb [ I ] US
to deal with problems or difficulties, esp. with a degree of success:
Inside homes, many residents coped with broken glass and collapsed walls and chimneys.
Victims cope with feelings of anxiety, pain, anger, and fear.
(Definition of “cope” from the Cambridge Academic Content Dictionary © Cambridge University Press)
